Patient Rights

Honduras's hemophilia patients' organization called on the government to establish a robust program for the estimated 371 Hondurans with the genetic bleeding disorder, citing critical shortages of coagulation-factor medicines and urging access to modern therapies like emicizumab.

Nasser Hilsaca, who died August 8 at Hospital General Atlántida in La Ceiba, had complained of inhumane treatment and abandonment before his death, but three days later no formal investigation has been opened and the Regional Human Rights Office says it received no formal complaint.