Rare Disease

Honduras's hemophilia patients' organization called on the government to establish a robust program for the estimated 371 Hondurans with the genetic bleeding disorder, citing critical shortages of coagulation-factor medicines and urging access to modern therapies like emicizumab.

Milton and Adonis Benítez, Honduran brothers known as the 'crystal brothers' for their rare genetic disorder osteogenesis imperfecta—which weakens bones, skin, and vision—died within hours of each other in Cedros, Lempira, drawing an outpouring of sympathy from their community and beyond.